Today is the last day of TS Awareness Month and I want to thank all of you who have come along for the journey. Today I'll be talking about getting connected with your local TS Chapter as well as the national and global TS network and how significant it was for both me and my … Continue reading Turner Syndrome Awareness Month: The importance of connecting with your local TS Chapter and beyond
Author: Jessica Grace
Turner Syndrome Awareness Month: TS and Autoimmune Disease
If you've been a regular follower of my blog then you know that I talk a lot about my experience with the autoimmune condition Crohn's disease. However, Inflammatory Bowel Disease is only one of the many autoimmune diseases that girls with TS are at an increased risk for. Others include autoimmune disease of the liver, … Continue reading Turner Syndrome Awareness Month: TS and Autoimmune Disease
Turner Syndrome Awareness Month: TS and Growth Hormone
One of the most obvious signs of Turner Syndrome is a decreased rate of growth due to a lack of response to the body's natural production of growth hormone. The average final height of girls with TS without growth hormone supplementation is around 4'6-4'8 which is why it is technically considered a form of proportionate … Continue reading Turner Syndrome Awareness Month: TS and Growth Hormone
Turner Syndrome Awareness Month: TS and Heart Defects
Did you know that February is not only Turner Syndrome Awareness Month but also Heart Month at BC Children's and other hospitals around the world? This is quite fitting because many girls with TS also deal with heart defects such as a bicuspid aortic valve, coarctation (narrowing) of the aorta, and aortic dissection or splitting/tearing … Continue reading Turner Syndrome Awareness Month: TS and Heart Defects
Turner Syndrome Awareness Month: TS and Hearing Loss
Among the many health problems that can come with Turner Syndrome is hearing loss, for which there are many reasons. Girls with TS, myself included, tend to have lower-set ears and a wider, shorter ear canal. This leads to frequent ear infections during childhood and into adolescence as well as fluid build up in the … Continue reading Turner Syndrome Awareness Month: TS and Hearing Loss
Turner Syndrome Awareness Month: My Experience with Non-Verbal Learning Disorder
I'm sure that all of you have heard of learning disabilities such as dyslexia, ADD, and ADHD but one that you may not be so familiar with is Non-Verbal Learning Disorder or NVLD. This is the learning disability most common in girls with Turner Syndrome. Unlike other learning disabilities, those of us with NVLD tend … Continue reading Turner Syndrome Awareness Month: My Experience with Non-Verbal Learning Disorder
Turner Syndrome Awareness Month: Premature Ovarian Failure, HRT and Psychosocial Development
Today I'll be talking about the part of Turner Syndrome that has probably affected me, at least emotionally, the most: Premature Ovarian Failure, subsequent HRT (Hormone Replacement Therapy), and its impact on Psychosocial Development in girls with Turner Syndrome. As I said in my last post, Turner Syndrome results in either the complete or partial … Continue reading Turner Syndrome Awareness Month: Premature Ovarian Failure, HRT and Psychosocial Development
Turner Syndrome Awareness Month: My Story
"For you created my inmost being;you knit me together in my mother’s womb.I praise you because I am fearfully and wonderfully made;your works are wonderful, I know that full well.My frame was not hidden from you when I was made in the secret place,when I was woven together in the depths of the earth.Your eyes … Continue reading Turner Syndrome Awareness Month: My Story
IBD Awareness Month Blog 2: IBD and Diet
One of the biggest struggles for those of us living with Crohn's and Colitis is our relationship with food. I would like to preface this post by saying that there is a lot of debate amongst medical professionals as to whether diet plays a role in IBD or not and so a lot of GIs … Continue reading IBD Awareness Month Blog 2: IBD and Diet
IBD Awareness Month Blog 1: My Diagnosis Story
November is Crohn's and Colitis Awareness Month in Canada and I thought I would start off my telling my diagnosis story. My journey with IBD started in Grade 11/12 (although I didn't know it at the time). My earliest symptoms were food aversions, early satiety, random fevers, and random bouts of cramping and loose stools. … Continue reading IBD Awareness Month Blog 1: My Diagnosis Story
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